I wanted to make sure that there's that everything's kind of ready to go for when family visits and all that kind of stuff. So I just wanna make things as easy as possible for, for everybody. Looking at Sarah, you would never think she was told she has two or three weeks left to live. But now knowing that you can see Sarah preparing her family for her homecoming and we were expecting to have more time. You know, we weren't. I was, I was just hoping to make it through the holidays. Honestly, at 13 years old, Sarah got sick and was diagnosed with *** rare kidney. I had, um, like ***, *** rash of bruises basically along my legs. And, uh, that was very painful. I mean, it got to the place where I could hardly walk some days and it was just miserable. Six years later, her mom donated her *** kidney, but unfortunately that new organ failed. It had *** lot of issues. I'll just say that. So I went into rejection multiple times, even though I was compliant with my medication, Sarah thought she would get *** third chance at life when her best friend volunteered to donate her *** kidney. But after multiple tests, her friend was diagnosed with lupus making her an unsuccessful donor. They just, they don't feel like I would be able to um do *** transplant without um without dying essentially from sepsis. Despite her challenges, Sarah says she's still grateful for life. Realistically, if I had not received the care that I had received, I would have died when I was 13 and for nearly *** decade, Sarah's husband has been by her side. Um seven long years of battling all this and she's, I think she's ready. Unfortunately, just love her very much. I try my best for seven years and you put in *** good fight baby. She lived longer than she was supposed to by *** long shot by *** very long shot. Their four year old daughter doesn't understand what's happening, but Sarah is creating *** hope chest. So she can always remember her throughout her life. There's probably dozens if not hundreds of letters at this point um to open at different various points in her life. So like her first day of school all through um her *** graduate degree, potentially um me going *** t guy, I'm going up to the sky. That's right, baby. She's not become *** star. Yeah. Take *** look up at the stars and you see me. I feel like I've already had my miracle. I feel like Riley is my miracle and getting to spend these years that I've had with her is my miracle because Justin has put in so much work and so much effort into making sure that I stay alive and saving my life time and time. And I would rather have 26 really good years full of adventure and full of meaning and full of love and just the most beautiful people. And I'm so glad that I got that instead of 100 mediocre ones reporting in Savannah. Savannah younger WJCL 22 news.
'I've already had my miracle': 26-year-old mom enters hospice care with only weeks to live
Sara Long, a wife and mother to a 4-year-old daughter, says she is grateful for life, despite her challenges.
As the holiday season begins, Sara Long, a 26-year-old woman in Savannah, Georgia, is entering hospice care after a prolonged battle with kidney failure.Now, Long, a wife and mother, is preparing to say final goodbyes to family and friends."I wanted to make sure that everything's kind of ready to go for when family visits and all that kind of stuff," Long said. "So, I just want to make things as easy as possible for everybody."Long has been told she has two to three weeks left to live and is now preparing her family for her passing.“We were expecting to have more time, you know," she said. "I was just hoping to make it through the holidays, honestly."Long was diagnosed with a rare kidney disease at 13 years old.“I had a rash of bruises along my legs. And, that was very painful. I mean, it got to the place where I could hardly walk some days, and it was just miserable,” she said.Six years later, her mother donated a kidney to her. But the new organ failed."It had a lot of issues," Long said. "I'll just say that. So I went into rejection multiple times, even though I was compliant with my medication."Long thought she would get another chance at life when her best friend volunteered to donate a kidney. However, after multiple tests, her friend was diagnosed with lupus, making her an unsuitable donor."They just don't feel like I would be able to do a transplant without dying from sepsis," Long said.Despite her challenges, Long remains grateful for life."Realistically, if I had not received the care that I had received, I would have died when I was 13," she said.For nearly a decade, Long’s husband, Justin, has been by her side."Seven long years of battling all this, and she's...I think she's ready, unfortunately," said Justin Long."I just love her very much. I tried my best for seven years, and you had a good fight, baby. She lived longer than she was supposed to," he added."By a long shot. By a very long shot," Sara Long responded.Their daughter, Riley, 4, is too young to understand what is happening, but Long is creating a hope chest so Riley can always remember her."There are probably dozens, if not hundreds, of letters at this point, to open at different various points in her life. So, like her first day of school all through, or a graduate degree, potentially," Long said."Mommy, are you going up to the sky?" Riley Long asked."I'm going up to the sky," Sara responded."That's right, baby, she's going to become a star," Justin Long added."Yeah. You can look up to the stars when you see me," Sara said."I feel like I've already had my miracle," Sara said. "I feel like Riley is my miracle. And getting to spend these years that I've had with her is my miracle because it has put in so much work and so much effort into making sure that I stay alive and saving my life time and time again.""I would rather have 26 really good years full of adventure and full of meaning and full of love and just the most beautiful people and I'm so glad that I got that instead of 100 mediocre ones," she added.Sara Long’s family has created a GoFundMe for her funeral expenses.
SAVANNAH, Ga. —
As the holiday season begins, Sara Long, a 26-year-old woman in Savannah, Georgia, is entering hospice care after a prolonged battle with kidney failure.
Now, Long, a wife and mother, is preparing to say final goodbyes to family and friends.
"I wanted to make sure that everything's kind of ready to go for when family visits and all that kind of stuff," Long said. "So, I just want to make things as easy as possible for everybody."
Long has been told she has two to three weeks left to live and is now preparing her family for her passing.
“We were expecting to have more time, you know," she said. "I was just hoping to make it through the holidays, honestly."
Long was diagnosed with a rare kidney disease at 13 years old.
“I had a rash of bruises along my legs. And, that was very painful. I mean, it got to the place where I could hardly walk some days, and it was just miserable,” she said.
Six years later, her mother donated a kidney to her. But the new organ failed.
"It had a lot of issues," Long said. "I'll just say that. So I went into rejection multiple times, even though I was compliant with my medication."
Long thought she would get another chance at life when her best friend volunteered to donate a kidney. However, after multiple tests, her friend was diagnosed with lupus, making her an unsuitable donor.
"They just don't feel like I would be able to do a transplant without dying from sepsis," Long said.
Despite her challenges, Long remains grateful for life.
"Realistically, if I had not received the care that I had received, I would have died when I was 13," she said.
For nearly a decade, Long’s husband, Justin, has been by her side.
"Seven long years of battling all this, and she's...I think she's ready, unfortunately," said Justin Long.
"I just love her very much. I tried my best for seven years, and you had a good fight, baby. She lived longer than she was supposed to," he added.
"By a long shot. By a very long shot," Sara Long responded.
Their daughter, Riley, 4, is too young to understand what is happening, but Long is creating a hope chest so Riley can always remember her.
"There are probably dozens, if not hundreds, of letters at this point, to open at different various points in her life. So, like her first day of school all through, or a graduate degree, potentially," Long said.
"Mommy, are you going up to the sky?" Riley Long asked.
"I'm going up to the sky," Sara responded.
"That's right, baby, she's going to become a star," Justin Long added.
"Yeah. You can look up to the stars when you see me," Sara said.
"I feel like I've already had my miracle," Sara said. "I feel like Riley is my miracle. And getting to spend these years that I've had with her is my miracle because it has put in so much work and so much effort into making sure that I stay alive and saving my life time and time again."
"I would rather have 26 really good years full of adventure and full of meaning and full of love and just the most beautiful people and I'm so glad that I got that instead of 100 mediocre ones," she added.
Sara Long’s family has created a GoFundMe for her funeral expenses.